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Title: NIH Office of Rare Diseases Research (ORDR)
Url: http://rarediseases.info.nih.gov/
Publisher: National Institutes of Health (U.S.)
Description: This National Institutes of Health website focuses on rare diseases, which are also called orphan diseases. The FAQs section in the About ORDR link states that a rare disease is a "disease or condition affecting fewer than 200,000 persons in the United States. An estimated 25 to 30 million people in the United States have a rare disease." Visitors will find that the information on this website is suitable for patients, health practitioners, researchers, caregivers, students and anyone interested in rare diseases. The Rare Diseases News tab near the top of the homepage contains such pertinent news as, "NIH Announces Genetic Testing Registry," "Undiagnosed Diseases Program Now Accepting New Applications," and "ORDR Announces Workshop on Natural History Studies of Rare Diseases." Visitors interested in participating in clinical trials should check out the tab Research and Clinical Trials, where there are over a dozen federal and non-federal web resources that have materials on such matters.
LC Classification: Medicine -- Internal medicine -- Rare diseases
Medicine -- Public aspects of medicine -- Public health. Hygiene. Preventive medicine -- Study and teaching
GEM Subject: Health -- Disease
Health -- Instructional issues
Science -- Instructional issues
Key Concept: Health -- Diseases
Key Concepts Complete: Yes
Resource Type: Collection (DCMI Type Vocabulary)
Reading Materials
Reference
Science Materials
Text (DCMI Type Vocabulary)
Format: html
Audience: College/University Instructors
Higher Education
Professional Formation
Secondary Education
Students
Teachers
Technical School First Cycle
Technical School Second Cycle
University First Cycle
University Postgrad
University Second Cycle
Vocational Training
Language: English
Access Rights: Free access
Date Of Record Release: 2012-03-27 03:00:05 (W3C-DTF)
Date Last Modified: 2012-03-26 10:15:37 (W3C-DTF)
Source Type: Internet Scout
Source: Scout Archives  Scout Archives
Full Record Views: 16
Cumulative Rating: NOT YET RATED
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